Cookie Monster

“Reason for your visit to the ER tonight?”

“Umm, I’m having a bad trip. I ate part of a pot cookie.” Dear God the humiliation. The nurse lowered her head and squinted at me over her glasses. “And I have cancer!” I blurted out.

“Please take a seat over there,” she said pointing.

I sat down in the waiting room, which on a Friday night was hopping like a club. My dad, who had accompanied me, took a seat next to me. If I remember correctly I think he was reading The New Yorker, which he’d brought with him from home.

Feeling paranoid from the weed, I decided I needed to “lay low,” so I slithered down in my chair, the lowest I could go. My dad peered down at me out of the corner of his eyes; no doubt he was counting the minutes until my partner arrived to take over babysitting. I tried sneaking a peak at the others sitting around me; they looked like a pretty rough crowd.

“Dear God, Goddess and Universe: I’m having a bad trip and I’m surrounded by sketchiness. Can you please help? Thank you.”

My partner arrived, greeting my dad as if nothing the least bit strange was transpiring. My dad wished me luck – like I was about to write an exam – then left. Soon after I was sitting with my partner at a nurse’s desk as she took my vitals. I explained that I had been eating the cookie, (baked by a well-meaning friend), in an effort to soothe my anxiety enough so that I could eat a proper dinner. Since my recent cancer diagnosis I was having great difficulty eating and had already lost seven pounds.

“I had one bite and it tasted awful, like poison. But nothing happened so I took another bite.” The nurse looked at me, as if to say, “don’t you know anything?”

“Then I was in the bathroom for a long time, re-arranging things and looking at my pores.” I’m pretty sure the nurse was silently judging me at this point.

I continued, “and I felt good, but then I started freaking out…” I trailed off.

As if by magic, I was suddenly presented with a cardboard bowl and I barfed up some banana. I tried throwing up daintily – I mean despite this horror I was still a lady.

The decision was made that I would “ride out my bad trip,” on a stretcher in the waiting room, positioned a bit off to the side. I lay down feeling at once very safe and very exposed. I babbled to my partner, clutching him at times as if I were in grave danger.

“Am I seeing what I think I’m seeing?” I asked him. The waiting room had suddenly become an episode of Law & Order, with two belligerent women handcuffed to their respective stretchers; police officers standing nearby. I wondered if the women were high on drugs too. “My God,” I lamented to myself, “look at the depths to which I’ve sunk. I’m on drugs and hanging out with criminals.”

Several hours later, no longer tripping and back at home cuddled up with my dog Leroy, I reflected on one of life’s most important rules:

When eating edibles, especially homemade edibles, refrain from acting like The Cookie Monster.

Take one bite and wait. Check your pores, re-arrange stuff, do whatever you want, but do NOT take a second bite right away.

Wait and then wait some more.

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Hospital Room Decor

Back in April I wrote a post about having so many flowers in my hospital room that it started to look like a funeral parlor.  If you have a loved one battling a serious illness, consider buying one of these non-flower gifts to lift their spirits and brighten up their hospital room:

One of Emily Mcdowell’s amazing Empathy Cardsimage

Add some razzle-dazzle with this fabulous gold planter from the Oh Joy! Collection for Target.  Btw, I own this ladyface planter and she makes me so happy!  If you really want to give flowers, place a colorful orchid inside, or fill it with hospital necessities: lip balm, facial wipes, sleep mask, earplugs and candy (if they’re able/allowed to eat it).

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If the patient is in the hospital any longer than a week, a colorful lightweight blanket is perfect.  When I was in the hospital I had a bright red blanket, it was cozy and it helped to make my room feel less institutional/jail-like:

Indigo sells this blanket in several colors:

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A sleep mask makes a great gift for both men and women.  Trying to sleep in the hospital – with the God awful hospital lights blaring at all hours – is frustrating as hell!  Here is my partner sporting a handmade mask that I bought in downtown Los Angeles (LOL!):

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More conventional, but no less colorful sleep masks, are available at many drugstores, Bed Bath & Beyond, large bookstores, Amazon, Sephora...💤💤💤

Finally, a framed photo of your beloved pet is a wonderful idea for a hospital room.  When I was trapped in the hospital for two months, my old dog walker brought be a framed photo of my precious dog Leroy.  Seeing his face each day kept me going; I knew I had to focus on getting better so that I could see him again.❤️🐾❤️

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Ways in which cancer is making me weird (or weirder). Part one:

Since the day my oncologist diagnosed me with a rare, incurable cancer, one for which long-term survival is considered five years, I have become obsessed with getting rid of my belongings.

It’s not that I’m into Minimalist Living, the trendy lifestyle of the moment, because I’m a proud Maximalist. Nor am I following the advice of best selling author Marie Kondo, whose book “The Life-Changing Magic of Tidying Up,” advocates purging everything which does not bring us joy. Most of Kondo’s system just doesn’t work for me. I tried following her strict rules, but halfway through folding my socks so that they stood upright like mini soldiers in my drawer, I lost my freaking mind. I started dressing up my, (now deceased dog), Leroy, in my old sweaters:

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I have so many lovely things (most of them not practical – that’s my specialty) and each piece brings me joy. Therefore I should keep them all, right? I’ve never heard anyone say: “I want less joy in my life please.” Note: I am not an actual hoarder. As part of a volunteer job I used to visit an elderly woman who was a true hoarder, so I know what that chaos looks like; I’m just a collector of pretty things.

The kind of de-cluttering and purging that I engage in, is fueled by my deep anxiety that I will die soon and that my partner with be stuck with all of my stuff. He will be devastated (his word) and in addition to processing his own grief and dealing with my family, (they love him deeply and consider him their son-in-law), he will have to go through all of my belongings. Having never had to be in charge of such a depressing task, I can only imagine how difficult it would be. I see my compulsive de-cluttering as preparation for my death and as something that will make my partner’s life a little bit easier down the road.

Of course the deeper truth here is my desperate need to control something, anything.  I can’t control my cancer. I can’t control how my body reacts to cancer treatments. I can’t control the myriad of complications that arise. But I can control how much stuff I leave behind and that makes me feel less powerless.

So I continue my regular mini-purges. I keep most of my vintage items, like Pulp Fiction books with wonderful cover art, my hoop earrings circa 1980’s high school years, my pink rotary telephone…

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But I’ve given well over half my wardrobe to charity. Since I now have to wear an ileostomy bag, most of my fitted clothes no longer work, so I’ve freed them from their closet shackles so they can now bring joy to other women: women who are suffering in unimaginable ways – fleeing abusive partners, struggling to put food on the table for their kids, trying to kick drug addictions…These women deserve every little spark of joy that I can give them.

Gifts were initially harder for me to part with because of the guilt I felt and I must give credit to Marie Kondo for helping me with this issue. She encourages people to let go of unwanted gifts – with love, gratitude and blessings (or something like that) – and allow others the chance to experience joy.

In my case many of my unwanted gifts were jewelry items. My partner is not a jewelry gift giver, so that wasn’t a problem. And I kept some gifts that had sentimental value: an amber stone ring that my youngest brother gave me, my paternal grandmother’s wedding ring, a beaded Goddess necklace that my best friend gave me twenty-five years ago…But all the other jewelry that I had never worn, I cleaned, then bought individual decorative boxes to put them in before dropping them off at a women’s shelter; they would make beautiful birthday and holiday gifts. By helping another woman feel special, I was also – selfishly – helping myself. For each gift that I gave away I felt my spirits lift. It was as if each box contained a magic potion that wafted out and enveloped me, making me feel, (at least temporarily), very happy.

My partner is weary of my de-cluttering compulsion, I think it makes him a bit uncomfortable; it seems a tad ghoulish. He’s also concerned that I might get rid of something that has sentimental value to him, so I’m very careful and mindful of his feelings.

In the end it’s my cancer journey (though I abhor that expression) and if getting rid of stuff that I have no love or use for helps me cope, then I’m going to continue. Who knows, maybe one day I’ll become a Minimalist.

 

 

 

Skinny Jeans

It was my first time trying on skinny jeans and I was excited. My legs are stocky, inherited from my mom’s side of the family who were all strong Irish farmers. As a teenager I had yearned for my dad’s long, pole-style legs and had even asked my parents if I could get my legs stretched (I had read somewhere that a lengthening machine existed).

At forty-six years old I had long ago accepted by body, but when I slipped into a pair of size 24 skinny jeans and saw my legs looking strangely slim, suddenly my insecure teenage self reappeared and she was ecstatic. Yet the reason they looked slender was because I had lost weight due to cancer. I was newly diagnosed with Peritoneal Mesothelioma, a rare, incurable form of abdominal cancer and I was in denial. “I’ll take them,” I told the shopgirl. And though I’m ashamed to admit it, for the next few weeks I actually liked how I looked. How sick is that? Speaking of sick, during this same period I did not feel well: I had difficulty eating, major nausea and twice daily panic attacks where I felt like my throat was closing.

My cancer “de-bulking” surgery was eight hours long and included the removal of my reproductive organs, a section of my small intestine and my primary tumour which I had named Maude. It also included a treatment called HIPEC, which is essentially hot chemotherapy poured directly into the abdomen while the patient is still on the operating table, aka a chemo bath.

After several days in the ICU, I was moved to the step-down unit. It was there, ablaze with pain and high on narcotics, that I made a decision: I had suffered enough. I would run away from the hospital and fly to Oregon where I had read they had passed legislation that allowed patients to “die with dignity.” But such an escape would be impossible without my skinny jeans.

“I need my clothes,” I whispered in a raspy voice to my partner. Not wanting to upset me, but suspicious of my intentions, he retrieved my hospital bag and put it next to me on the bed. I pawed at it in a drugged-out frenzy, then passed out.

I awoke to a large tiger staring at me from across the room. And someone had brought their dog to work: “I can’t believe they let animals in the hospital!” I said to myself, horrified. My great escape would have to wait, the hospital needed me; I had to keep watch over the creatures infiltrating the building.

Also, I had a new friend whom I had become very attached to and I didn’t want to leave her. A nurse’s assistant had been placed in my room to guard me, since in my delusional state I had made several attempts to get out of bed (while attached to multiple tubes and monitors). Not understanding that she was there to keep an eye on my crazy self, I thought I had my own private nurse-friend and I adored her.

Due to a myriad of complications, I spent two months in two different hospitals. At the second one, a rehab hospital, the nurse weighed me: the scale read 94 pounds, I usually weigh 120. I had lost a great deal of muscle mass; my legs were emaciated, atrophied sticks and my bum was pancake-flat. I avoided looking at myself in the mirror, it was too upsetting. I begged God to help me gain back the weight, promising never to complain about my thick legs again.

In retrospect I think my early fixation on my legs was simply my way of avoiding the intense emotions that were surfacing. I was scared of dying, who wouldn’t be? But what really troubled me was the idea of hurting those I loved. I was blessed with a partner, family, friends and a one-eyed elderly street dog who all loved me. I didn’t want to cause them pain.

Now, two and a half years later, I am back up to 120 pounds and I’m as stocky as ever. I am extremely lucky to be alive, many people with Mesothelioma don’t live more than a year after diagnosis. And though I’m grateful, I’m also aware that I’m living on borrowed time. So now I wear skinny jeans as often as possible. It’s my way of giving cancer the middle finger.

The famous skinny jeans try-on at ShopGirls on Queen West in Toronto.  I had already lost ten pounds here and little did I know that I would lose 20 more…

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Intimacy After Cancer Treatment

I wrote an essay about navigating intimacy after cancer treatment which was just published in The Globe & Mail Newspaper.  I am grateful to them for sharing my story.

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The Crazy Room

This morning as I was tidying up, I briefly entered our laundry room/office which is our “crazy room.” I think most of us have one of these, or the equivalent – a crazy closet, drawer or cupboard. It’s the place where everything you don’t want to deal with goes to die. I found myself thinking that the crazy room is very similar to that space in our psyche where we dump all of our emotional crap that we can’t deal with at the moment.

I keep telling my partner, “we need to deal with that room, it’s out of control.” And it’s true, it is out of control. For someone like me, who likes keeping the house clean and organized, the room makes me anxious. But the crazy room is actually more representative of my true emotional state than the rest of the tidy house. The crazy room has unopened boxes, piles of cords and computer stuff, unfolded clean sheets, my partner’s plaid shirts hanging from an IKEA shelf like little headless Grunge creatures, a dead plant, my ileostomy supplies (thank you cancer), a giant box of small catheter tubes (again, thank you cancer) and various other randomness.

And just like I side-step and avoid the issues that I don’t want to deal with, I also breeze right past the dead plant – sitting on the floor – to put in a load of laundry. Why not just pick up the plant and put it out in the green bin? That is what an emotionally healthy person would do, I think to myself as I breeze out of the room again. But somehow that damn dead plant and the rest of the crazy room has come to symbolize all the ways in which I am emotionally stuck, frozen, paralyzed.

I am extremely lucky in that I can afford to see a therapist, it’s a luxury many needy people don’t have. So in a sense I have an ’emotional cleaning lady’ who helps me clean up my personal crazy room twice a month. And yet, somehow, it seems no matter how hard I try, my crazy room never gets completely cleaned. Just as my cleaning lady and I finish cleaning one area of the room, another area beckons for attention. Its boxes need unpacking, its cords need untangling and its damn plant needs to be thrown out!

Emily to the rescue!

When I was diagnosed with Peritoneal Mesothelioma, a rare, incurable cancer, many people didn’t know what to say to me.  I don’t blame them at all, I wouldn’t have known what to say to me either.  Enter the brilliant Emily McDowell and her fantastic line of Empathy Greeting Cards.  Emily has created cards for those many awkward moments in life when we just don’t know what to say.  Whether your friend is struggling with cancer, infertility, or the death of a beloved pet, Emily’s cards are perfect.  They are humorous and heartfelt and many of them poke fun at the ways in which we try to say the right thing but fail miserably.  As a cancer survivor, Emily knows first hand what it’s like to have friends say cringe-worthy things like, “none of us know when we’re going to die, I could get hit by a bus tomorrow!”  So let Emily’s cards do the talking for you and bring a smile to your loved one’s face.

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For more amazing cards:

Empathy™: What to say, when you don't know what to say